Been away till today. Here are some updates.
Life has changed since the last 1 month+ this happened.
I have been sleeping in the hospital for nearly 26 days. Been into ICU, HDU and Ward. Changed 2 hospitals. Been emotional, fear, sad, tears, etc.
Anyway, my son is now back at home. His condition is stabilized. But damage is already done.
Certain part of his brain has been damaged. It is ANEC, but unknown to what virus/bacteria that triggers it. Blood test came negative for Influenza A, B and H1N1. Doctor cannot explain how he got it. It can be from anywhere, anytime and anything. It is just unfortunately he is wrong place wrong time and got exposed it.
At the moment, his brain has caused him to have Dystonia (http://en.wikipedia.org/wiki/Dystonia
). He is either sleeping soundly, staring blanks or screaming in pain due to stiffness/cramps at both legs and hands. He is awake but not fully conscious. He cannot respond to things. A lot of suffering for him.
He is not able to eat/drink through mouth. He cannot swallow his own saliva either. So right now, we are feeding him milk through tube.
Since he is back home, we can see his condition are improving. Not by big improvement, but small small improvements. Doctor said on the bright side, he is still small and there are some chance he may improve, but doctor said we have to be prepared that it may not.
We are not losing hope. We are still keeping faith. Life is tough, but if this is what god has decided for us... we will go through this test.